10 years ago…

And to think I thought this day 10 years ago was the worst…

January 28, 2009

My hands are shaking really bad as I type this so please forgive me.

We got REALLy bad news…Ava has relapsed. They found a 2cm tumor in the old tumor site.
Scratch radiation….we are still working out the treatment options with the docs. The news came very late today.

We had a very long day with tests.
Ava did so wonderfully. She was sedated from about 9:30 to I think it was 3. She didn’t eat until 5pm, but was very satisfied with her McDonalds…guess it was worth the wait.

Make a Wish is the best!! Ava needs to start her new treatment ASAP so we are leaving this Friday for Disney.
We were going to cancel, but I couldn’t bear telling the girls we weren’t going and then the worst thought… maybe we wouldn’t ever get to go came to mind. The Make a Wish team went right to work and we got a call in record time that everything has been rescheduled.

Right now the plan is to start with very high dose chemo and then start a stem cell harvest then more chemo and radiation. Surgery is also an option with more chemo and radiation.

I don’t have answers and I can’t tell you
how scared we are. I feel very numb and sick and mad and sad. I thought January 11, 2008, was a bad day, but January 28, 2009, blows that day out of the water. Relapse is the Worst word when your child has cancer.

Please pray for us!! That is what our little Ava needs right now…a miracle from GOD!

Ava picked for her bedtime story The Story of Jesus. She is smart and faithful beyond her years!!

God bless
~Joni

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